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Community-Based Participatory Research Disabled Children Genetic disorders in children Patients Family relationships Niemann-Pick Disease, Type C therapy Niemann-Pick diseases Treatment Parent-Child Relations Parents Parents of children with disabilities Rare diseases Patients Rare Diseases therapyFilter By Genres
bibliographySaini, Angela
Summary: "In Superior award-winning science writer Angela Saini explores the concept of race, past and present. She examines the dark roots of race research and how race has again crept gently back into science and medicine. And she investigates the people who usethis research for their own political purposes, including white supremacists. They believe that populations are born different, in character...
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Publisher / Publication Date: Beacon Press 2019
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Place a hold to request this item.Marcus, Amy Dockser
Summary: "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the...
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Publisher / Publication Date: Riverhead Books 2023