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Chronic pain Chronically ill Douleur chronique Ehlers-Danlos syndrome Ehlers-Danlos syndrome Patients United States Biography Ehlers-Danlos syndrome Popular works Health Syndrome d'Ehlers-Danlos Ouvrages de vulgarisation Syndrome d'Ehlers-Danlos Patients États-Unis Biographies United StatesMalone, Sharon
Summary: "A practical guide to aging and health for women who have felt ignored or marginalized by the medical profession, from a leading Ob/Gyn and expert on menopausal and post-reproductive health. The medical system today is increasingly complicated and impersonal, and unfortunately, it is not going to be less so in the future. The rules of engagement have changed in medicine, but no one has bothered...
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Publisher / Publication Date: Crown 2024
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Place a hold to request this item.Graybeal, Alyssa
Summary: When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she's finally forced to confront the reality of her condition head on. When she finds herself...
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Publisher / Publication Date: Red Hen Press 2023